Showing posts with label Escambia County School District. Show all posts
Showing posts with label Escambia County School District. Show all posts

Tuesday, September 4, 2012

Thankful For Good Days

Several, several months ago, Christopher's psychiatrist wanted him hospitalized.  He refused to make any adjustments on his ADHD medication, even after several months of concern that his impulsion was once again, out of control.  He was endangering himself, and his sister, or anyone else he was around when his medication didn't work.

The side effect of two of the medications Christopher was taking (Abilify and Focalin) was aggression.  He said the only way we could know if the child, my child, was being aggressive because of his behavior, was to take him completely off one, and then the other.  Gradually.

Since I did not want my son hospitalized where I would not be able to be with him, I chose the long road of decreasing meds, using my oils when I could; but trying to make them last because we just could not afford to replenish them.


While Christopher is home schooled, because he was in the gifted program in Kindergarten, he was allowed to continue to be a part of the PATS program in 1st grade through Escambia County School District.  I just took him each week instead of him riding the bus.  No big deal.


By the last three months of school, his writing had become so poor it was no longer legible.  I could not get him to sit still and keeping his attention on the subjects was impossible.  Our daily schooling consisted of repetition . . . . mainly focusing on how we respond to people, emotions, how to process, "What do we do when we get angry, Christopher?"  etc.


Out of desperation I spoke to his therapist.  They were not working on his writing and abilities at the time, so she was shocked when I showed her this.






I then spoke with his PATS teacher, and yes, she was concerned as well as Christopher had been unable to complete ANY work in the last several weeks.

We suffered through the rest of the year and most of the summer.


A few months ago we had to put Christopher back on medications because we simply could not continue buying the oils and the impulsion was absolutely exhausting me and taking its toll on the rest of the family.


While one medication was working well, his ADHD medication was not working and the horrible side effect was not sleeping, up and down all night and hallucinations.  It was a rough few months of trial and error.  The hallucinations seem to be under control and I believe were medication related; however, he is now regularly having full body tics.  While we haven't "gotten there yet," and probably never will the way the body changes and metabolizes, it seems we are making progress in the attention and impulsion area.


We started back our 2012/2013 school year a few weeks ago, just a couple days a week to start getting in a routine.


We have had good and bad days since we started back; but today, my son thrived!


We worked from 9 a.m. to noon; broke for lunch and finished up lose ends from 1 p.m. to 2 p.m.  Last year we used a computer program and he loved it, but would HATE to write and fought me all day on it; and while he still does not like to write, he is doing so much better using things printed straight off the computer!  


Christopher has only written on the THICK lined Pre-K and Kindergarten writing paper.  His writing is HUGE and he often runs out of space.


Today, for writing, we talked about how to write dates correctly, margins, and proper spacing between words.  Yes, this is something he was taught in Kindergarten, but, as his home-school evaluator explained to me, Christopher will always be ahead in areas because of how smart he is, but he will also be behind in areas because of his disabilities.  It is my job to push him along and encourage him in the slow areas (reading, writing, and spelling) and challenge his brain in mechanical, mathematical, cultural, scientific areas.  (Yes, pray for me.  I hated school and passed by unknowns reasons.  Seriously.  Pray hard!)


My son will be 8 this month. With the months of regression he had earlier in the year, he couldn't take what was in his brain and put it on paper, couldn't complete a thought verbally without getting confused where he was or what he was even talking about, and writing his own name was impossible.


Today, for the first time EVER, he wrote on wide rule paper and writing WELL!  It takes him a LONG TIME to get the information from his brain to the paper, BUT HE IS DOING IT!
 





He had one spelling error.  I wrote, "When I grow up . . . . . "  He traced that, but everything else he wrote himself. 

Very proud!

Monday, October 24, 2011

Fearfully and Wonderfully Made . . . .

While Escambia County has no school today; "The School of Hard Knocks" (Christopher's homeschooling) does.

Christopher hates to have to write or repeat work that he has already done (and if he already knows the work, forget it). 

While trying to be creative this morning (as I struggle with thinking outside the box) and "change things up" for him, I said, "Christopher, you don't have to write the same word back to back, make one list and then another." 

To that suggestion, his eye balls got huge, his finger goes in the air, and he says. . . . . .

"I HAVE AN IDEA!

stock vector : Have an idea emoticon


Give me another pencil!" 


(Yes, he writes with both his hands!)  He wanted to write the list once, with both hands so he gets both writings done quicker!  

How he comes up with these things is beyond me. BUT what I do know is my God made him so special; and with a brain that thinks "outside the box."

Christopher's new psychiatrist has diagnosed him with a form of "brain damage."  While I and others do not agree with this diagnosis; it is what it is. 

When Christopher was 3 years old and started occupational therapy, his therapist noticed that Christopher had a "mid-line" problem.  What that means is, he would start writing with his left hand, reach the middle of page, switch to his right hand and continue writing with his right hand to finish to line of work. 

Because of this, an MRI was done in 2009.  In the MRI, it was found that the Corpus Callosum part of the brain (the part of the brain that connects the right and left brain functions), was under developed.


We were told that people with this under-development would never play sports.  Well, if you know me or my son, then you know that Christopher is a VERY active little boy that plays EVERY sport we can get him in!  He plays soccer, basketball, and t-ball! 

What man says is impossible, God makes possible!

The Bible tells me that I, (all of us) am (are) fearfully and wonderfully made. 

In fact, the scriptures say that "I am to praise God because I am fearfully and wonderfully made!"   Psalm 139:14

When I question Him, and criticize Him for how He made me, or question why He made Christopher with so many problems; I insult my Father in Heaven.  I never realized that before today.

Precious time and thought went in to how He made me.  How He made Christopher.  How He made each of us.  Who am I to argue with that?

"Father forgive me when I complain of how you made me, nit-picking about parts and not thankful for how you designed me.  Use me for your glory.  May I never be ungrateful or complain again.  I love you, Lord.  I praise you.  I trust you and I trust your plan.  So be it, Jesus.  Amen!"

Basking in His goodness,

Stacey