Showing posts with label Anxiety Disorder. Show all posts
Showing posts with label Anxiety Disorder. Show all posts

Tuesday, September 4, 2012

Thankful For Good Days

Several, several months ago, Christopher's psychiatrist wanted him hospitalized.  He refused to make any adjustments on his ADHD medication, even after several months of concern that his impulsion was once again, out of control.  He was endangering himself, and his sister, or anyone else he was around when his medication didn't work.

The side effect of two of the medications Christopher was taking (Abilify and Focalin) was aggression.  He said the only way we could know if the child, my child, was being aggressive because of his behavior, was to take him completely off one, and then the other.  Gradually.

Since I did not want my son hospitalized where I would not be able to be with him, I chose the long road of decreasing meds, using my oils when I could; but trying to make them last because we just could not afford to replenish them.


While Christopher is home schooled, because he was in the gifted program in Kindergarten, he was allowed to continue to be a part of the PATS program in 1st grade through Escambia County School District.  I just took him each week instead of him riding the bus.  No big deal.


By the last three months of school, his writing had become so poor it was no longer legible.  I could not get him to sit still and keeping his attention on the subjects was impossible.  Our daily schooling consisted of repetition . . . . mainly focusing on how we respond to people, emotions, how to process, "What do we do when we get angry, Christopher?"  etc.


Out of desperation I spoke to his therapist.  They were not working on his writing and abilities at the time, so she was shocked when I showed her this.






I then spoke with his PATS teacher, and yes, she was concerned as well as Christopher had been unable to complete ANY work in the last several weeks.

We suffered through the rest of the year and most of the summer.


A few months ago we had to put Christopher back on medications because we simply could not continue buying the oils and the impulsion was absolutely exhausting me and taking its toll on the rest of the family.


While one medication was working well, his ADHD medication was not working and the horrible side effect was not sleeping, up and down all night and hallucinations.  It was a rough few months of trial and error.  The hallucinations seem to be under control and I believe were medication related; however, he is now regularly having full body tics.  While we haven't "gotten there yet," and probably never will the way the body changes and metabolizes, it seems we are making progress in the attention and impulsion area.


We started back our 2012/2013 school year a few weeks ago, just a couple days a week to start getting in a routine.


We have had good and bad days since we started back; but today, my son thrived!


We worked from 9 a.m. to noon; broke for lunch and finished up lose ends from 1 p.m. to 2 p.m.  Last year we used a computer program and he loved it, but would HATE to write and fought me all day on it; and while he still does not like to write, he is doing so much better using things printed straight off the computer!  


Christopher has only written on the THICK lined Pre-K and Kindergarten writing paper.  His writing is HUGE and he often runs out of space.


Today, for writing, we talked about how to write dates correctly, margins, and proper spacing between words.  Yes, this is something he was taught in Kindergarten, but, as his home-school evaluator explained to me, Christopher will always be ahead in areas because of how smart he is, but he will also be behind in areas because of his disabilities.  It is my job to push him along and encourage him in the slow areas (reading, writing, and spelling) and challenge his brain in mechanical, mathematical, cultural, scientific areas.  (Yes, pray for me.  I hated school and passed by unknowns reasons.  Seriously.  Pray hard!)


My son will be 8 this month. With the months of regression he had earlier in the year, he couldn't take what was in his brain and put it on paper, couldn't complete a thought verbally without getting confused where he was or what he was even talking about, and writing his own name was impossible.


Today, for the first time EVER, he wrote on wide rule paper and writing WELL!  It takes him a LONG TIME to get the information from his brain to the paper, BUT HE IS DOING IT!
 





He had one spelling error.  I wrote, "When I grow up . . . . . "  He traced that, but everything else he wrote himself. 

Very proud!

Saturday, October 15, 2011

He Knows My Name . . .

First of all, I have taken off the music player on my blog.  I post too much music on here to have it playing; so it's off. 

Have had a strange week . .  struggled with anger, jealously, envy, anger (yes, that is on here twice for a reason), bad attitude . .  fear, anxiety . . . . . its all been here. 

Through it all, what keeps coming to my mind and the only thing giving comfort to my heart is knowing, "He Knows My Name." 

He knows every hair on my head (Luke 12:7). 

He knew me before the womb (Psalm 139).

He knows my thoughts before I even speak them (Psalm 139).

He knows . . .  it all!

I've been praying all week and preparing for sharing my testimony on Sunday at Nothing Lost Outreach.  While my heart seems to be at peace,  my mind is a fog.  Scriptures are racing and my thoughts are jumping from one to another . . .

My prayer, as well as many others for me this week, have been that I would speak only the words the Lord would have me to speak and that He alone would be glorified!

I have only lost one pound the last two weigh ins.  Really struggling with commitment.  While even one pound loss in nothing gained, it just seems like it should be more.  I have incorporated exercising more; not the six days a week like my doctor would like, but working up towards that.  I was able to put on my grandmother's wedding band that she gave to Chris to propose with.  I haven't been able to wear it in two years.  It is still tighter than I like my rings to be, but getting close, and that excites me!  Just a few more pounds and I'll be at the halfway mark!

On a side note, I sure am missing my Kayla. She is visiting her boyfriend's family in Georgia this weekend. Please pray for her. She will be home on Monday and then has class Monday night.  I know she is 19; but she is still my baby (I know, I'm a sap).  She is struggling with College Chemistry right now and College Algebra.  She has to have majors in both of these fields if she wants to major in Meteorology. 

Christopher has had a horrible cough and green for one week now.  When Christopher doesn't feel good, it makes everything else worse; his emotions, the melt downs, the anger . . . . just exhausting.  BUT, as a sweet friend reminded me, God chose us to raise this special, special young boy!  I can't wait to see what God does through his life!

Kaitlyn has been chewing the skin off the tips of her fingers and thumbs.  The speculation is the Ritalin she was started on for the ADHD has increased her anxiety and heightened her sensory issues; which would explain the fight we are having with tags, clothing, shoes and socks again.  She is constantly digging on her finger nails and toe nails as well.  She stays nervous, not knowing when Christopher will react next.  Breaks my heart.

Thanks for stopping by today.  I have to get off here so I can finish my scripture references. 

Continuing, to Walk in Victory,

Stacey


Psalm 139:13

Sunday, June 19, 2011

More Changes for Christopher


Some weeks ago Christopher had a second sleep study done.  We got the results on Friday.  Christopher does not have sleep apnea; but he does have severe restless legs.  His little feet kicked every two minutes all night long. 

The neurologist we saw to get the results of the sleep study says sertraline (the generic for zoloft) can cause restless legs, so that medication will be reduced in order to start him on a new medication for his anxiety disorder.  Also, what is so scary is Christopher's heart rate dropped below 30 beats per minute o the night of the sleep study.  He is taking clonodine to put him to sleep (which has never worked to keep him to sleep).  He was at the maximum dose of .4mg.  I called the psychiatrists office immediately; he was decreased to .2mg as he has to be taken off in stages.  We hope to meet with the doctor Monday in order to go to the next phase of getting him off the clonodine and the sertraline.

We finally seemed to get his medicine somewhat in tune to what he needs for his mood disorder and the ADHD; now to have to make the other changes is somewhat frustrating.   Sure would appreciate your prayers over the next few day and even weeks as his little body takes on more changes.

Thanks a bunch!

Continuing to trust in Him,

Stacey